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PFD Registry Available as Resource for Applicants Responding to PCORI Announcement for Large Pragmatic Studies to Evaluate Patient-Centered Outcomes
AUGS
AUGS is interested in facilitating research using the PFD Registry for applicants responding to the recent PCORI announcement for Large Pragmatic Studies to Evaluate Patient-Centered Outcomes in the proposed topic area of pelvic floor mesh implants. Specifically the RFA is looking for proposals that:
  • Compare the effectiveness of the use versus non-use of surgical mesh in repair of pelvic floor dysfunction in terms of infections, urinary or fecal incontinence, bowel injury, pain, sexual function, and other patient-centered outcomes.
  • Compare the effectiveness of different types of mesh using different surgical techniques in terms of outcomes mentioned above.
  • For additional information concerning this topic area, review pages 40-45 of the PCORI Topic Briefs.
A letter of intent is due to PCORI on October 1, 2014; if accepted the grant is due February 3, 2015.

AUGS encourages those interested in responding to this RFA to consider using the Pelvic Floor Disorders Registry (PFDR) as a as the electronic data capture system for their Large Pragmatic Study. Use of other AUGS resources can also be considered in the grant application. Further details about the PFD Registry can be found at http://pfdregistry.augs.org/.

Individuals/institutions interested in partnering with AUGS on this opportunity should provide by midnight ET on September 15th the following:
  • A one-page summary of the proposed research which includes:
    • Study aims
    • Registry resources to be used
    • Anticipated sample sizes needed
  • CV of the Principal Investigator
All materials should be sent to pfdregistry@augs.org, subject: PCORI Grant.

A Review Task Force will be established to review all applications and provide their recommendation to the AUGS Board on September 19th. AUGS will select up to two applications. Individuals/institutions will be notified of the Task Force's decision on September 22nd. The selected institution/individual will be responsible for preparing the PCORI application. AUGS will provide the necessary information about the resource as well as a letter of support.

Questions concerning this process should be directed to Matthew Barber, Registry Steering Committee Chair at barberm2@ccf.org.
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AUGS HIGHLIGHTS


Share AUGS Resources with Your Patients
AUGS
Pelvic Floor Disorders Affect 1 in 3 Women. Share these helpful resources provided by AUGS with your patients. These tools and resources allow your patients to connect with others and find information about what they are experiencing.
  • VoicesforPFD.org — Our patient website recently launched a new design! Patients can connect here with other women and find helpful resources about PFDs.
  • Pelvic Floor Dialogues — A patient e-newsletter with the latest research and resources available. Currently quarterly, in 2015, Pelvic Floor Dialogues will be sent on a bi-monthly basis.
  • BladderTrakHer — This useful app includes a bladder diary, voiding and medication reminders and more. Download the BladderTrakHer app for FREE in the Apple App Store.
Visit www.voicesforpfd.org to learn more.

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PFD Registry Available as Resource for Applicants Responding to PCORI Announcement for Large Pragmatic Studies to Evaluate Patient-Centered Outcomes
AUGS
AUGS is interested in facilitating research using the PFD Registry for applicants responding to the recent PCORI announcement for Large Pragmatic Studies to Evaluate Patient-Centered Outcomes in the proposed topic area of pelvic floor mesh implants.

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Colby Horton, Vice President of Publishing, 469.420.2601
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Caitlin McNeely, Senior Editor, 469.420.2692  
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