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Home   About   Member Services   Conferences   Public Policy March 18, 2010
 
 
 
In cancer fight, teenagers don't fit in
The New York Times    Share   Share on FacebookTwitterShare on LinkedinE-mail article
Experts say that since teenagers tend not to ask adults for help or confide about embarrassing physical changes, they are likely to receive their cancer diagnoses much later in the course of their illness than younger children. And that usually means they will require more aggressive and protracted treatments that can lead to lifelong side effects. While overall survival rates are as high as 70 to 80 percent, depending on the type of cancer, teenagers have not benefited from the huge advances in survival made by younger children and much older adults in recent decades. More



NACHRI HIGHLIGHTS


Proposals due Thursday, March 25, for NACHRI 2010 Annual Leadership Conference
NACHRI    Share    Share on FacebookTwitterShare on LinkedinE-mail article
NACHRI is excited to announce the 42nd annual call for proposals for the 2010 Annual Leadership Conference (formerly Annual Meeting) in Minneapolis on October 17 – 20. The NACHRI Council on Education is seeking proposals around this year's theme, "Breakaway: Transforming Leadership Models, Enterprising Technology Solutions and Evaluating Tough Options." Proposals are due Thursday, March 25. More

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CarePages is the #1 hospital-branded private website connecting patients with loved ones. Plus, CarePages protects your facility with strict policies that reinforce security. Contact  Missey Moe-Cook to learn how CarePages can enhance the patient experience. MORE


LATEST NEWS


A better test for finding autism genes?
ABC News    Share    Share on FacebookTwitterShare on LinkedinE-mail article
A genetic test for autism currently classified as a secondary approach may be able to pick out the underlying causes for the condition at a rate more than three times that of a screening considered to be a first-tier test, according to a new study published in the journal Pediatrics by the Autism Consortium and Children's Hospital Boston. Researchers launched the study to compare the newer screening, called chromosomal microarray analysis, against the tests that the American Academy of Pediatrics currently considers to be first-tier approaches — G-banded karyotype and fragile X testing. More

Three rulings find no link to vaccines and autism
The New York Times    Share    Share on FacebookTwitterShare on LinkedinE-mail article
In a further blow to the antivaccine movement, three judges ruled in three separate cases that thimerosal, a preservative containing mercury, does not cause autism. The three rulings are the second step in the Omnibus Autism Proceeding begun in 2002 in the United States Court of Federal Claims. The proceeding combines the cases of 5,000 families with autistic children seeking compensation from the federal vaccine injury fund, which comes from a 75-cent tax on every dose of vaccine. More



Peanut allergy can cause more severe asthma
redOrbit    Share    Share on FacebookTwitterShare on LinkedinE-mail article
A new study suggests that children and teenagers that have peanut allergies might have more-severe asthma attacks. According to the study, out of the 160 5-to 18-year-olds with asthma studied, 46 with peanut allergies had more hospitalizations for asthma exacerbations than children without the food allergy. Those children also had higher rates of treatment with oral corticosteroids. Twenty-three percent of the children and teens with peanut allergy had been hospitalized for asthma after the age of three, compared to 16 percent of those without peanut allergy. More

Medicine's future could lie in each patient's genome
WMC-TV    Share    Share on FacebookTwitterShare on LinkedinE-mail article
Two separate scientific teams announced recently that they had successfully sequenced individual genomes to pinpoint precise genetic causes of illness — breakthroughs that open the door to a future of individualized, genomics-based medicine. "This is another milestone in the inevitable march towards personalized genetic health," said Dr. Robert Marion, chief of genetics and development medicine and director of the Center for Congenital Disorders at Children's Hospital at Montefiore Medical Center in New York City. "Medicine is going to change from waiting for symptoms to develop to knowing what this person is at risk for and being able to stop that from happening. Eventually, we're talking about prevention." More

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A magical way to move kids: Researcher uses magic tricks to treat children with locomotor disabilities
Science Daily    Share    Share on FacebookTwitterShare on
LinkedinE-mail article
It's often hard to motivate youngsters with physical disabilities. But a new approach from a Tel Aviv University researcher bridges the worlds of behavior and science to help kids with paralysis and motor dysfunction improve their physical skills and inner confidence — using a trick up her sleeve called "magic." Dr. Dido Green of Tel Aviv University's School of Health Professionals developed an innovative yet remarkably simple series of therapeutic exercises for children and young adults based on sleight-of-hand tricks used by professional magicians. Dr. Green and her magicians used sponge balls, elastics and paper clips to teach the children how to perform the challenging, fun and engaging exercises. More

Study explores child end-of-life scenarios
The Boston Globe    Share    Share on
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When Christine Reilly's little boy was being treated for cancer, she told his doctor she could handle almost anything. "The only thing I will not be able to tolerate is him looking at me and saying, 'Mommy, it hurts,'" she recalled. Michael died when he was 5 years old of alveolar rhabdomyosarcoma, which was diagnosed when he was 9 months. His pain was well controlled, especially at the end of his life. But Reilly said she can understand why a parent would contemplate ending the life of a dying child sooner if that would ease the child's unrelieved suffering. A small study published in the Archives of Pediatrics & Adolescent Medicine reports that more than one in eight parents surveyed considered hastening the death of a child with terminal cancer, with the child's suffering increasing the likelihood of such thoughts. More
 
 
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