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Cincinnati Children's Hospital on cusp of gene therapy breakthrough
Cincinnati Enquirer Share    
Researchers are awaiting the green light to test a cutting-edge cure for a devastating disease that leaves babies unable to fight off the simplest infections. Cincinnati Children's Hospital Medical Center has gotten permission from the U.S. Food and Drug Administration to test a gene therapy treatment against X-linked severe combined immunodeficiency, or so-called "bubble-boy" disease. It's the first federal approval the Corryville hospital has
received for a gene therapy treatment conceived and manufactured in its own lab. More
| N.A.C.H. FAMILY ADVOCACY DAY COVERAGE |
New York girl with 2 heart transplants visits DC, urges
protection of pediatric care
The Journal News
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Jennifer McKiever is only 12 years old, but she has already had more than a lifetime's experience with
doctors and hospitals. The Suffern Middle School student was born with a heart defect. She had one heart transplant when she was 5 and another when she was 8. Along the way, she developed a form of cancer and underwent radiation treatments along with countless other tests and treatments. So when the New York City facility where she has been treated since she was a baby was looking for a young person to help advocate for access to specialized pediatric care for children with complex medical
needs, Jennifer and her family were happy to help.
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Northborough, Mass., 7th-grader travels to DC to put a face to health care needs
The MetroWest Daily News
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John Gillespie spent parts of last week in Washington, D.C., visiting his legislators and chatting about health care policy. He's not a lobbyist; he's a seventh-grader at Melican Middle School. But in 2006, doctors at Children's Hospital Boston diagnosed him with ulcerative colitis, an autoimmune disease. Last week John told U.S. Sen. Scott Brown, R-Mass., and U.S. Rep James McGovern, D-3rd, that if he did not have access to a
pediatric specialist, he might not be entering the eighth grade this fall.
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Pediatric care
advocates
Brattleboro Reformer
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A Dummerston, Vt., family has returned from Washington, D.C., after participating in NACH Family Advocacy Day
to discuss the importance of access to high-quality pediatric care around the country. Kara Garvey and Brian Knapp took their 6-year-old son Zebediah "Zeb" Knapp to the nation's capital last week to show their support for the children's hospitals around the country, particularly the services they use in Boston.
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Webinar: Increasing Patient Satisfaction in Children's
Hospitals -
Learn how Children's Hospitals are measurably improving patient and family satisfaction by engaging them at the bedside through interactive patient care. We'll explore the initiatives impacted including discharge readiness, condition and medication education, and environment of care issues. RSVP Today
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We're TIAA-CREF, and by serving the healthcare world since 1918, we are well versed in the unique characteristics of hospital pension plans. Our mission is to look after you, members of the medical community, so that you and your employees can look forward to a healthy retirement. LEARN MORE HERE
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Over 400 birthing hospitals and 1 in 5 Children's Hospitals use the HALO® Safer Way to Sleep® Program. Learn how your hospital can implement this highly effective
SIDS education program by contacting us for your FREE HALO® SleepSack® wearable blanket sample and information kit today. Request a FREE SAMPLE!
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Combo vaccine raises risk of fever-related seizures in kids
HealthDay via Bloomberg Businessweek
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Toddlers who receive the combination MMRV (measles, mumps, rubella and varicella) vaccine are at higher risk of having a febrile seizure a week to 10 days after receiving the shot than children who get the MMR and varicella (chicken pox) vaccines separately at the same visit, a new study confirms. Although the combination shot doubles the risk of febrile seizure, the odds
are still quite small, experts noted.
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Vaccination role unclear in whooping cough outbreak
CNN
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Whooping cough, declared an epidemic in California last week, may look like just a cold or a persistent cough in adults. But in infants, it can be fatal, making adult vaccination essential, doctors say. Peaks in cases of the highly contagious disease cycle every two to five years. California saw its last peak in 2005, with 3,182 cases, according to state health officials. "We're right about at the five-year peak, but we're on track
to surpass our 50-year high," said Mike Sicilia of the California Department of Health.
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Kids and MRSA: Combination spreading fast
Bucks County Courier Times
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U.S. hospitals have experienced a ten-fold increase in children hospitalized with highly contagious and drug resistant staph skin infections. The trend is reflected in local emergency rooms, where
officials say kids often outnumber adults who are sickened by the persistent super bug. Equally worrisome, the new study found growing concern the bacteria are developing resistance to one of the main antibiotics used to treat the infections.
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Many doctors not testing teens for HIV as recommended
Chicago Tribune
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It's supposed to be this simple: A teenager goes in for an annual physical, and at some point the doctor says, "HIV testing is a routine part of the exam. Would you rather not be tested?" But almost
four years after federal officials urged that routine HIV testing begin at age 13, unless the patient declines, experts say many health care providers who treat teenagers have not adopted the recommendations. Meanwhile, Americans ages 13 to 29 represent more new HIV infections than any other age group, making up 34 percent of new infections documented by the U.S. Centers for Disease Control and Prevention in 2006.
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Bone marrow transplant revolution gives Aurora, Ill., family new hope
The Daily Herald
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Aurora dad Bob Evanosky is not a perfect match to donate bone marrow to his children, who have a rare, crippling disease. But a new technique is allowing him
to donate bone marrow to two sons in a way that never could have been done before. The big difference? "You don't die from the new way," Evanosky says.
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Thinking outside the tube
Akron Beacon Journal
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The way Carrie Gavriloff sees it, you should never judge a tube by its color. When the education coordinator of nursing products for Akron Children's Hospital heard about an international effort to improve the safety of tube-feeding supplies, she challenged the concept of using color-coded items. If nurses or other caregivers rely on color alone, she thought, deadly mistakes still can happen.
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Supporting your family-centered care initiatives is easy with CaringBridge. It's a free website to help patients stay connected during a serious health event. Learn more |
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Teen
girls say kids more likely to drink, do drugs to cope
USA Today
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Teen girls are more likely than teen boys to identify potential benefits from drugs and alcohol, says a study released today by the Partnership for a Drug-Free America. In the 2009 Partnership Attitude Tracking Study, more than two-thirds of teen girls reported that using drugs helps kids cope with problems at home, and half said drugs help teens forget troubles. The nationwide study, paid for by MetLife Foundation, surveyed 3,287
teenagers in grades nine to 12 in private and public schools.
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Living, breathing human lung-on-a-chip
redOrbit
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Researchers from the Wyss Institute for Biologically Inspired Engineering at Harvard University, Harvard Medical School and Children's Hospital Boston have created a device that mimics a living, breathing human lung on a microchip. The device, about the size of a rubber eraser, acts much like a lung in a human body and is made using human lung and blood vessel cells. Because the lung device is translucent, it provides a window into
the inner-workings of the human lung without having to invade a living body.
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Study: Fewer kids getting summer school meals
CNN
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Many summer food programs have been slashed during the recession leaving hungry children with fewer options, a report by the Food Research and Action Center said recently. The budget cuts reduced participation in summer school food programs across the nation over the past years, the anti-hunger group said. This drop in participation comes at a time when more and more families need these food programs, the Center said.
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From hand-crafted questions to rigorous custom designed applications, we can help you achieve excellence. For Full-Service Health Care Research,
call 800.678.5577 • www.ana-inc.com |
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The country's most
prestigious Children's Hospitals use EasyLobby to badge and track visitors. Shouldn't you? More
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